The Big WOW
Walking Around the World for Wilson's Disease

Big Wow 2021

Have a blast reconnecting with friends, neighbors and relatives when you have a Big Wow fundraiser.  We are holding an in person walk when the volunteer is able to.  This year the date is September 25.  If you cannot have an in person walk the virtual option is available.  We leave the fundraising pages open for a month.  This year we will leave them open for September and October.

It is amazing what a small group of volunteers can do.  Families having fundraisers have raised hundreds of thousands of dollars to pay for our research project that we refer to as the Patient Registry.  For those of you new to us, we have information about the importance of this research and the development of better ways to diagnose and treat Wilson disease <here> on this website.  Even with covid and u certainty our volunteers raised $25,000 in 2020.

Our Big wow master fundraiser page will be active on July 19, 2021.  

Setting up a fundraising page is easy. We have a video showing how easy it is using Amelia, a volunteer from last year. Here is the link to start.

All profiles will be placed on our website and all volunteers become Wilson’s Warriers. Every fundraising page will get a callout on our Facebook page for people to share and thank the volunteers. There also will be a link on our website so you can see the fundraising pages and donate to one or all of them.

Like usual, we ask that you tell a story or provide a reason why you are fundraising and have a picture to post. There are social sharing options. We will promote your fundraiser too.

Why is this our last Big Wow

Our Big WOW has raised nearly $400,000 since its start in 2015! This annual fundraiser was created to help fund the Patient Registry study, which is the most significant research project in the history of the WDA. Raising the millions of dollars needed to fund this pivotal study is no trivial goal for an organization the size of WDA, but we’ve been able to meet our goals so far thanks in part to a small army of volunteers.

These volunteers were dedicated, stepped out of their comfort zones, and asked their family, friends, coworkers, and neighbors to support them. The family fundraisers were grassroots simple and it’s amazing what they accomplished! The Big WOW participants shared their personal WD stories which we’ve archived on our website. These powerful stories of courage and perseverance are a special source of information and support to newly diagnosed patients and their families seeking answers to their questions and concerns. Physicians and pharmaceutical companies find the stories to be a valuable resource in better understanding Wilson disease. If you’d like to read them, you can find them under the Wilson’s Warriors tab on our website https://www.wilsonsdisease.org/for-patients-families/wilsons-warriors

The WDA has two more payments of $400,000 each to complete our commitment to pay for the Patient Registry study. The first payment is due in October 2021, and the final payment is in April 2022. These amounts are a tight squeeze for the WDA. Our donations continue to lag due to COVID-19. After our final payment, we can think about the next great research project we’d like to undertake in order to better understand WD so more people can be diagnosed early, begin treatment and live their best quality of life possible.

We need this final Big WOW to take our fundraising to the next level. We are planning the last Big WOW virtually and can provide the fundraising platform for all those who are interested in joining us. If you’d like to have a walk, you can have a walk. If you want a fundraising page, we can provide that too. We can help you write your personal story. Sign-up instructions are on our website under the Big WOW 2021. Wouldn’t it be nice to have a final reunion of all fundraisers and Big WOW donors to help us meet our goal? Let us know This email address is being protected from spambots. You need JavaScript enabled to view it. if you’d like to be part of the Big WOW reunion, and of course, new volunteers are encouraged and welcome!

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