Administration

Connect with Wilson Disease Association

Send Email

Physician Contacts

List of Physicians and Institutions in Your Area

View Contacts

Support Contacts

Individuals who can offer Support and Information

View Contacts

 Kaelyn Everham

My 14 year old daughter Teagan, shown in the photo, was diagnosed with Wilson’s Disease at the age of 8.  

In the span of a year Teagan had easily fractured 3 bones so I asked our pediatrician to test her vitamins levels and test her for Lupus.  Her first blood work came back with her liver enzymes in the 200 range. Two weeks later we ran the tests again and the enzymes were in the 300 range.  We were sent to Seattle Children’s Hospital for an ultrasound which didn’t indicate a problem.  Two weeks later we went back to Children’s for an eye exam but there were no rings in her eyes.  A week later we went back for a liver biopsy which confirmed she had Wilson’s Disease and moderate damage to her liver.

Since being on Gluzin for the past 6 years and avoiding copper in her diet her disease is under control.  

We are so thankful for a wonderful pediatrician who stayed on top of things and especially having Children’s Hospital and Dr. Hahn so near by.  

Teagan is happily starting high school in September.

 

 

Pin It

Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

Search Our Site