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Patrice Goostree

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I have two adult children that have Wilson's disease. At the time they were diagnosed they were 14 and 17. That was 14 years ago. We had changed from a pediatrician to an internist. They both had lab work after their initial visits for sports physicals. They both had elevated liver enzymes. The doctor called them back for more lab tests and within 10 days called to tell me he was quite certain they had Wilson's disease. Things became challenging after that because of their ages and misinformation. We ended up seeing Dr.  Askari at University Of Michigan, and getting the correct information. They are very fortunate to be healthy today.

We have been to a couple Wilson's conferences and understand that not all people with Wilson's are so fortunate. This is the main reason I volunteered to organize a walk in the Chicago area.

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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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