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Cathy Bergmann

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Wilson ’s disease has affected our family for many years. In 1969 my oldest brother was very ill and the family doctor was away during the time. The doctor that was ‘filling in’ had learned about Wilson Disease and had a hunch that this was what was affecting my brother.  The remainder of the family (7 children at the time, the 8th born later that year) were all tested.  Five of the eight of us children (3 boys/2 girls) were diagnosed with Wilson Disease.

As we grew into adulthood we each struggled with our medicine routines, costs of the medicine and associated understanding of Wilson Disease.  In August 1988, our sister, Therese, died as a result of non-compliance with the medication; for what she told doctors and friends were ‘personal reasons’.  Needless to say, this rocked our family core. 
 
In the subsequent years, we each have continued to struggle with appropriate medicine, acquiring of it; insurance declining medications, and expenses of the illness.  The bigger frustration is the number of doctors that have not treated a WD patient and only know it as ‘the copper thing’.
 
I am an advocate for the education and support for those with Wilson Disease.
 
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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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