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From Wilson Disease Association

A Pilot Study to Investigate Changes in the Brain in Patients with Wilson Disease using MRI

Patients with Wilson Disease are being recruited for a Pilot study to evaluate brain changes using MRI.

This study is being sponsored by the Wilson Disease Association.
We seek to investigate changes in the brain in patients with Wilson disease using MRI, and to correlate findings with clinical and cognitive assessments. Participation will involve an MRI scan lasting approximately 1 hour, as well as cognitive and neuropsychiatric assessments.

There is only 1 visit required. Total time commitment will be about 2.5 hours.

Reimbursement for your transportation and parking will be up to $100.

You may be eligible to participate, if you meet the following criteria:

  • Male or female, aged 18-75 years’ old
  • Have a diagnosis of Wilson Disease
  • Are fluent in English (due to standardized assessments)
  • Must pass the MRI metal screening
  • Are not claustrophobic

To discuss possible participation please contact Yale New-Haven Hospital, Neurology Department by calling 203-785-2185

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Mary L. Graper
Mary L. Graper President
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She has also served as Vice-President and Treasurer.
Jean P. Perog
Jean P. Perog Treasurer
Mrs. Perog is a retired CPA living in Quilchena, British Columbia. She has WD and has a brother with WD. Jean has served as Treasurer of the WDA since 2005.
Help us to promote the well being of patients with Wilson disease and their families and friends.