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2018 Annual Conference
Houston, Texas. April 27-28, 2018


Friday, April 27   5:00pm - 6:30pm  Welcome Reception

For those of you arriving early for Saturday's program. Please get your FREE TICKET so we have a head count for hors d'oeuvres. Thank You.

Saturday, April 28   8:30am – 5:00pm Educational and Support Program

Please note that kids are welcome and there will be programs and activities for ages 8-13 and 14-18 during the medical presentations and a breakout session for older kids.

8:00am – 8:30am    Registration/Complimentary Continental Breakfast 
8:30am – 8:40am  

Welcome and Opening Remarks
Tamir Miloh, MD and Jean Perog

 8:40am - 9:00am  

Copper metabolism and Wilson Gene (ATP87B) function
Svetlana Lutsenko, PhD. Department of Physiology and Department of  Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, WDA Medical Advisor

 9:00am - 9:20am   Peptide Immuno-SRM Analysis of ATP7B Protein for Potential   Newborn Screening of Wilson Disease    
Sihoun Hahn, MD, PhD
9:20am – 9:50am   Screening family members of patients with Wilson Disease
Benjamin Shneider, MD
 9:50am - 10:20am   Challenges in the diagnosis of Wilson Disease: overlap with other diseases
John Vierling, MD
10:20am - 10:40am    Questions
10:40am - 11:00am   Break - Complimentary Refreshments
11:00am - 11:30am   Update on the Wilson Disease Cooperative Network (WDCN), trials and Wilson Disease Patient Registry
Michael Schilsky, MD, FAASLD, Medical Director, Yale New Haven Transplantation Center, Fellowship Director, Transplant Hepatology Director, Center for Excellence for Wilson Disease at Yale University New Haven Connecticut. WDA Medical Advisor
11:30am - 11:45am   Questions for Michael Schilsky, MD
11:45am - 12:45pm   Complimentary Lunch and WDA Annual Business Meeting
12:45pm - 1:15pm   Management of patients with chronic liver disease
Fred Askari MD, PhD. Associate Professor of Internal Medicine, Director of the Wilson Disease Center of Excellence at University of Michigan, Ann Arbor, Michigan. WDA Medical Advisor
1:15pm - 1:35pm   Indications for Liver Transplant                                  
Norman Sussman, MD
1:35pm - 2:00pm   Nutrition in WD
Stacey Beer, MPH, RD
2:10pm - 2:25pm   Questions
2:25pm - 2:50pm   Break - Complimentary Refreshments
2:50pm - 3:10pm   Movement Disorders
Dr. Mered Parnes
3:10pm - 3:30pm   Adherence in patients with WD
Tamir Miloh, MD
3:30pm - 3:50pm   Transition of care, social security and Special education needs 
Jose Ramierez, LCSW Texas Children's Hospital
3:50pm - 5:00pm  

Roundtable Discussions Facilitated by the Speakers

1. Basic translational and clinical  research – Dr. Lutsenkio, Askari
2. WDCN Questions – Dr. Michael Schilsky
3. Clinical questions including drugs and substances – Drs. John Vierling and Norman Sussman. Patti Paulin, RN, Wilson Disease Nurse Coordinator
4. Pediatric Questions –  Dr. Tamir Miloh and Lucero G. Franco-Haghenbeck
5. The patient with neurological symptoms - Dr. Peter Hedera
6. Diet - Stacey Beer

6:00pm - 10:00pm  

Conference Banquet

Music will be playing from 6:00pm - 10:00pm
Listening music during dinner, then dancing music.
Kids giveaways and an ice cream bar after dinner.


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Jean P. Perog
Jean P. Perog President
Jean is a retired CPA living in Merritt, British Columbia. She has WD and has a brother with WD. Jean also served as Treasurer of the Wilson Disease Association and is an active volunteer in her community.
Carol Terry
Carol Terry Vice President
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She also served as Vice-President, Treasurer and Secretary.
Mary L. Graper
Mary L. Graper VP Scientific Affairs
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Jeanne A. Friedman
Jeanne A. Friedman Secretary
Jeanne is a Licensed Clinical Social Worker and has WD. She has been with Wilson Disease Association since 2013 and lives in Kew Gardens, New York.
Stephen Walsh
Stephen Walsh Treasurer
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

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