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About WDA
Who We Are

Our Mission

The Wilson Disease Association funds research and facilitates and promotes the identification, education, treatment, and support of patients and other individuals affected by Wilson disease.

Our Vision


Our vision is to be recognized for excellence as an international, non-profit health organization.

Support

The WDA provides a caring community that will offer each Wilson disease family information, guidance and emotional support. We are dedicated to education, advancing treatments, and finding a cure for Wilson disease.

Your WDA membership is important. There is power in numbers. We would like to see our membership grow to encompass all affected by Wilson disease, worldwide. When we speak out about Wilson disease to media, pharma, congress, medical and other organizations, our voice will be strong as one and our message will be clear.

As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group.

Member Rights 

When you choose one of the membership levels on the Membership Form, in addition to the benefits listed for each level, you are entitled to:

  • vote in annual elections.
  • vote on proposed changes to the WDA Bylaws.
  • seek nomination to be a member of the WDA Board of Directors.
  • access to your member profile and donation history at www.wda.donortools.com
  • access to a "Members Only" area on the WDA website.

Types of Membership 

The membership of the WDA consists of Members, Honorary Members, Organizational Members, and Professional Members.

Members.* 

There shall be no more than five membership categories, as established by the Board of Directors. Members of WDA have the right to vote. The Board of Directors prescribes membership dues. Any person who makes application and pays the prescribed dues is a member.

*Persons and family members affected by Wilson disease who are unable to pay dues but notify the WDA of their desire to be counted as members have regular membership status. If you are unable to pay dues, please fill out the renewal application with a note to that effect. You will be put on the membership list.

Honorary Members 

Honorary membership is extended to people who have rendered outstanding service on behalf of persons with Wilson disease. All Honorary Members are elected by the Board of Directors. Such members pay no dues, have no vote, and are not eligible to hold office.

Organizational Members

Organizations interested in activities related to the purpose of the Association may, upon application and payment of prescribed dues, be elected to organizational membership by the Board of Directors. Such members have one vote if a non-profit organization and no vote if a for-profit organization. Organizational members are not eligible to hold office. Each organizational member designates one individual as its representative.

Professional Members 

Physicians and other health care professionals who pay dues at the professional rate have the same privileges of membership as an individual member.

Term of Membership

Membership in the WDA is for a term of one year, from January 1 through December 31 of each year. Dues are due and payable on January 1st each year. Members who join for the first time after September 1st remain in good standing through December 31 of the following year.

Membership Renewal
Name
Email

At the end of one year membership, renewal notifications are mailed. The WDA does not provide membership cards. If you are unable to pay dues, please fill out the renewal application with a note to that effect. You will be put on the membership list.

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Mary L. Graper
Mary L. Graper President
Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee.
Carol Terry
Carol Terry Secretary
Carol was diagnosed in 1973 with WD and is a retired US Government accountant. She helped found the WDA in 1983 and served as its President for ten years. She has also served as Vice-President and Treasurer.
Jean P. Perog
Jean P. Perog Treasurer
Mrs. Perog is a retired CPA living in Quilchena, British Columbia. She has WD and has a brother with WD. Jean has served as Treasurer of the WDA since 2005.
Help us to promote the well being of patients with Wilson disease and their families and friends.