2016 ANNUAL CONFERENCE
Conference Registration: Registration for the conference is free for members, $60 for non-members. The conference banquet is $30 for members, $50 for non-members. To check your membership status, please log into your account at https://wda.donortools.com. This year’s registration will be completed online beginning on July 1, 2016. If you are unable to register online, please call the WDA office at 866-961-0533. All registrations must be received by October 8, 2016.
Crowne Plaza, Orlando, Florida
The Big WOW
There are two ways to participate: 1) sign up for a walk in a city in your region or 2) sign up as an individual and have your own walk. There is no prescribed length for the walk and we wanted to keep it simple by holding it in places where permits were not needed which add to the complexity and the cost. For example, our family is holding one at a park near our house and we will be walking 1-2 miles culminating with a picnic afterwards. We also will be drinking La Croix sparkling water, which is generously donating their water to every venue!
Saturday, October 1, 2016 at a City Near You
Wilson Disease Clinical Trials
The study drug, WTX101 (bis-choline tetrathiomolybdate) is a de-coppering agent that is being investigated for the treatment of Wilson Disease. The aim of this study is to confirm that the dosing regimen planned for use in future studies with WTX101 is safe and effective in de-coppering newly diagnosed Wilson Disease patients. The study will be conducted at 6 Wilson Disease expert centers (University of Michigan Hospital, Ann Arbor, MI; Yale University Medical Center, New Haven, CT; UCLA Ronald Reagan Medical Center, Los Angeles, CA; Medical University of Vienna, Vienna, Austria; University Hospital, Heidelberg, Germany; Institute of Psychiatry and Neurology, Warsaw, Poland).
New Center of Excellence at Seattle Children's Hospital
The WDA Centers of Excellence provide physicians who are well trained in the diagnosis and treatment of Wilson's Disease, physician training and research regarding Wilson disease, broad services needed by Wilson Disease patients and their families, and technical support required by patients (including laboratory metal analysis).
Wilson Disease Centers of Excellence
Wilson Disease Association Membership
We would like to see our membership grow to encompass all affected by Wilson disease, worldwide. When we speak out about Wilson disease to media, pharma, congress, medical and other organizations, our voice will be strong as one and our message will be clear.